My Heart Is Outside My Chest | BORN DIFFERENT
My Heart Is Outside My Chest | BORN DIFFERENT
A BRAVE girl born with a condition that means her heart developed outside of her chest has said she will not let her condition hold her back.
Virsaviya Borun-Goncharova, 12, was born with an extremely rare condition called Pentalogy of Cantrell.
It caused her rib cage and abdominal muscles to not form properly during her mother’s pregnancy.
Now, she shares her condition, lifestyle and passions to her followers to show people that it hasn’t held her back and won’t stop her from pursuing her dreams. Virsaviya, said: “My condition is called Pentalogy of Cantrel, and it basically means that my heart is outside of my ribcage.
So it's not protected by my rib cage anymore.
I would like to push my limits on what I can and cannot do because I want to inspire other people.
I want people to know that I am more than just my heart, I’m beautiful just the way I am.
And so are you.” Her mum, Dari, added: “My proudest moment I think is the fact that she's alive and that she's with me and that she's very intelligent, kind, caring and very loving.
This is the most important thing for me.”