Kerala HC seeks details of Centre’s crowd funding scheme for rare diseases
Tuesday, 9 January 2024
While hearing a petition filed by a 24-year-old suffering from spinal muscular atrophy seeking government help to fund treatment which would cost over Rs 2 crore per year, the Kerala High Court sought details from the central government regarding its crowdfunding initiative. The digital portal for crowdfunding and voluntary donations for patients of rare diseases shows collection of just Rs 2.9 lakh while 1,131 patients of rare diseases have registered for funding, of which 50 are registered as being in urgent need of donation.
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Kerala HC seeks details of Centre’s crowd funding scheme for rare diseasesWhile hearing a petition filed by a 24-year-old suffering from spinal muscular atrophy seeking government help to fund treatment which would cost over Rs 2 crore...IndiaTimes |
